
The Rare Disease Podcast
3.5 million people in the UK live with a rare disease, so while each disease is individually rare, together rare diseases are common. Hear interviews with patients, clinicians, advocates, students and researchers focusing on rare disease in clinical medicine.
This podcast is brought to you by Medics for Rare Disease. Podcast distributors create their own transcripts and M4RD doesn’t take responsibility for them
Podcasting since 2021 • 82 episodes
The Rare Disease Podcast
Latest Episodes
Can I Get An Amen?! How Drag Race Quotes Became my Mantra
For this week's episode of the podcast Lucy shares how iconic RuPaul quotes straight from his book have helped guide her through life both inside and outside of the medical world.
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Season 8
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Episode 7
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42:31

Why using the word "cure" isn't the way forward
For this week's episode of the podcast, Lucy chats to one of our new trustees Sheela Upadhyaya. Sheela is also a rare disease expert and life sciences consultant with over 25 years of healthcare experience.
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Season 8
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Episode 6
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50:37

Rare Futures: New projects and new voices with Emma Macleod
For this week's episode of the podcast, Lucy chats to our new trustee Emma Macleod all about her new role and the new project they are doing on behalf of the Department of Health and Social Care.
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Season 8
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Episode 5
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43:09

Light in the Silence: A review of the documentary 'It's not yet dark'
For this week's episode of the podcast, Lucy has Emily back on to chat about the documentary 'It's Not Yet Dark'.'It's Not Yet Dark' is about the story of Simon Fitzmaurice, a young filmmaker who becomes completely paralysed from Motor N...
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Season 8
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Episode 4
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40:08

The GP with MG: Experiences as a Doctor with Myasthenia gravis with Dr Hannah Brew
For this week's episode of the podcast, Lucy speaks with Dr Hannah Brew who is a Portfolio GP. Hannah speaks about all the many things she does that are hugely valuable to the NHS and health. Hannah also lives with Myasthenia gravi...
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Season 8
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Episode 3
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52:47
