The Rare Disease Podcast
Interviews with patients, clinicians, advocates, students, researchers focusing on rare disease in clinical medicine. This podcast is brought to you by Medics4RareDiseases who are asking medical professionals to #daretothinkrare in order to improve diagnosis, clinical care and research in this neglected but really important field of medicine. 350 million people in the UK live with a rare disease so while each disease is individually rare, together rare diseases are common.
Podcast distributors create their own transcripts and M4RD doesn’t take responsibility for them
Podcasting since 2021 • 74 episodes
The Rare Disease Podcast
Latest Episodes
Looking back, Moving Forward: The Medics for Rare Disease highlights of 2024
For this week's episode of the podcast, Lucy invites the M4RD team on with her to discuss this year's highlights for the charity and the exciting plans we have for 2025!We would like to take the opportunity to say a massive thank you to...
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Season 7
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Episode 15
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17:25
Why you should read 'Two for Joy' - the true story of one families journey to happiness with severely disabled twins
For this week's episode of the podcast, Lucy and our ambassador Maddy speak to the author James Melville Ross all about his book 'Two for Joy'.'Two for Joy' is the heart-warming true story of disabled twins Thomas and Alice, and their d...
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Season 7
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Episode 14
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58:28
Bombardier Blood: The man with Haemophilia who climbed the seven summits!
For this week's episode of the podcast, Lucy reviews the documentary Bombardier Blood with our trustee Dan and our ambassador Emily.Bombardier Blood is all about a man called Chris Bombardier who is on a mission to become the first pers...
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Season 7
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Episode 13
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32:55
Rare Disease Needs YOU! Want to know why? Listen to find out...
For this week's episode of the podcast, we need YOU to listen to find out why you should take part in a very important survey! Lucy and Emma will be discussing The Rare Disease Quality Statements Survey. The aim of the survey is to deve...
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Season 7
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Episode 12
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32:13
"Celine Dion spoke candidly and openly about Stiff Person Syndrome, but no-one picked up on that"
For this week's episode of the podcast, Helen our training programme manager takes over as host to speak with Mariette Kono, who is a medically retired occupational therapist who lives with Stiff Person Syndrome.Mariette talks all about...
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Season 7
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Episode 11
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31:27