
The Rare Disease Podcast
3.5 million people in the UK live with a rare disease, so while each disease is individually rare, together rare diseases are common. Hear interviews with patients, clinicians, advocates, students and researchers focusing on rare disease in clinical medicine.
This podcast is brought to you by Medics for Rare Disease. Podcast distributors create their own transcripts and M4RD doesn’t take responsibility for them
Podcasting since 2021 • 83 episodes
The Rare Disease Podcast
Latest Episodes
Genomics in Primary Care: Why Your Role Matters More Than Ever!
For this week's episode of the podcast Lucy chats to Isobel, Philandra and Vicki who are from the GMSA (Genomics Medicine Service Alliance). They are putting on a fantastic online event alongside the University Hospital Birmingham all about gen...
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Season 8
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Episode 8
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53:43

Can I Get An Amen?! How Drag Race Quotes Became my Mantra
For this week's episode of the podcast Lucy shares how iconic RuPaul quotes straight from his book have helped guide her through life both inside and outside of the medical world.
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Season 8
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Episode 7
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42:31

Why using the word "cure" isn't the way forward
For this week's episode of the podcast, Lucy chats to one of our new trustees Sheela Upadhyaya. Sheela is also a rare disease expert and life sciences consultant with over 25 years of healthcare experience.
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Season 8
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Episode 6
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50:37

How can the NHS better serve you?
For this week's episode of the podcast, Lucy chats to our new trustee Emma Macleod all about her new role and the new project they are doing on behalf of the Department of Health and Social Care.
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Season 8
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Episode 5
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43:09

What does it mean to live fully, even when your body fails you? A review of 'It's not yet dark'
For this week's episode of the podcast, Lucy has Emily back on to chat about the documentary 'It's Not Yet Dark'.'It's Not Yet Dark' is about the story of Simon Fitzmaurice, a young filmmaker who becomes completely paralysed from Motor N...
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Season 8
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Episode 4
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40:08
