
The Rare Disease Podcast
3.5 million people in the UK live with a rare disease, so while each disease is individually rare, together rare diseases are common. Hear interviews with patients, clinicians, advocates, students and researchers focusing on rare disease in clinical medicine.
This podcast is brought to you by Medics for Rare Disease. Podcast distributors create their own transcripts and M4RD doesn’t take responsibility for them
Podcasting since 2021 • 93 episodes
The Rare Disease Podcast
Latest Episodes
Not Just Words: Dr. Lisa Kaufman on Core Communication from the RSM
In this episode, we hear from the brilliant Dr. Lisa Kaufman, a Consultant Community Paediatrician, Associate Medical Director, and Communication Skills Trainer with Manchester Local Care Organisation (yes, she wears many hats!).Lisa sha...
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Season 8
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Episode 18
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34:53

Ambassadors for a Reason: What Medics for Rare Disease Gets Right
For today's episode of the podcast Lucy speaks with Charlotte Chapman Hart, who has just completed her first year of her two year ambassador program with us. Charlotte also works as a project manager for an NHS trust and recently w...
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Season 8
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Episode 17
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1:06:36

Is the NHS Listening to Its Young Patients?
For today's episode of the podcast, Lucy chats to Beth and Katie about a recent report that was published between the Youth Forum and the charity Barnardos called the Healthcare Transition Report 2024 to 2025. Beth and Katie are bot...
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Season 8
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Episode 16
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47:44

Warning Signs You’re Burning Out! (And What to Do Next) with Dr Claire Ashley
In this episode, Lucy sits down with Dr Claire Ashley, author of The Burnout Doctor, to explore what burnout really means, why it happens, and how we can begin to heal from it. Claire shares her personal journey of recovery...
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Season 8
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Episode 15
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1:01:19
