
The Rare Disease Podcast
3.5 million people in the UK live with a rare disease, so while each disease is individually rare, together rare diseases are common. Hear interviews with patients, clinicians, advocates, students and researchers focusing on rare disease in clinical medicine.
This podcast is brought to you by Medics for Rare Disease. Podcast distributors create their own transcripts and M4RD doesn’t take responsibility for them
Podcasting since 2021 • 80 episodes
The Rare Disease Podcast
Latest Episodes
Rare Futures: New projects and new voices with Emma Macleod
For this week's episode of the podcast, Lucy chats to our new trustee Emma Macleod all about her new role and the new project they are doing on behalf of the Department of Health and Social Care.
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Season 8
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Episode 5
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43:09

Light in the Silence: A review of the documentary 'It's not yet dark'
For this week's episode of the podcast, Lucy has Emily back on to chat about the documentary 'It's Not Yet Dark'.'It's Not Yet Dark' is about the story of Simon Fitzmaurice, a young filmmaker who becomes completely paralysed from Motor N...
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Season 8
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Episode 4
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40:08

The GP with MG: Experiences as a Doctor with Myasthenia gravis with Dr Hannah Brew
For this week's episode of the podcast, Lucy speaks with Dr Hannah Brew who is a Portfolio GP. Hannah speaks about all the many things she does that are hugely valuable to the NHS and health. Hannah also lives with Myasthenia gravi...
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Season 8
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Episode 3
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52:47

I found out I was intersex as an adult - Special guest episode with Lexi
Lexi Breen found out that she was intersex when she was an adult. Lexi has a condition that means she has three sex chromosomes (XXY) which causes many different health problems, in addition to variations of sexual characteristics. In this epis...
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Season 8
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Episode 2
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44:30

New look, New Era: NHS England moves and rare disease moments
Welcome back to the Rare Disease Podcast! We can't believe we're now on Season 8! For the first episode of the new season, Lucy covers our new branding, how Rare Disease Day went for the Medics for Rare Disease team and the recent n...
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Season 8
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Episode 1
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46:46
