The Rare Disease Podcast
Interviews with patients, clinicians, advocates, students, researchers focusing on rare disease in clinical medicine. This podcast is brought to you by Medics4RareDiseases who are asking medical professionals to #daretothinkrare in order to improve diagnosis, clinical care and research in this neglected but really important field of medicine. 350 million people in the UK live with a rare disease so while each disease is individually rare, together rare diseases are common.
Podcast distributors create their own transcripts and M4RD doesn’t take responsibility for them
The Rare Disease Podcast
What's it like working for a rare disease charity? with Rick Thompson
Let us know what you think of this episode! We read every comment we receive.
For this week's episode of the podcast, Lucy speaks with Rick Thompson who is the CEO of the charity Beacon for Rare Diseases.
He was the charity's third member of staff until he was promoted in 2017 and has written articles, given talks and provided training across the European rare disease community.
Beacon also works together with Medics4RareDiseases on the Student Voice Prize which is open for entries until November 15th 2023. Rick chats to Lucy about the history behind Beacon, what its like working for a rare disease charity and what drives him to work for the charity.
You can find out more about Beacon by visiting their website at https://www.rarebeacon.org/
Find out more about The Student Voice Prize by visiting https://www.rarebeacon.org/student-voice-prizes/the-student-voice-prize-2023/
Views, ideas and opinions expressed in this podcast are personal to the individual and Medics4RareDiseases does not accept responsibility for those expressed by guests.
M4RD receives funding from commercial companies which it works independently from. M4RD's Partners and Funders do not accept responsibility for any views expressed in this podcast.
M4RD does not endorse any companies or products that it receives sponsorship from. For more information please see the show notes and www.m4rd.org/sponsors #DareToThinkRare