The Rare Disease Podcast
Interviews with patients, clinicians, advocates, students, researchers focusing on rare disease in clinical medicine. This podcast is brought to you by Medics4RareDiseases who are asking medical professionals to #daretothinkrare in order to improve diagnosis, clinical care and research in this neglected but really important field of medicine. 350 million people in the UK live with a rare disease so while each disease is individually rare, together rare diseases are common.
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The Rare Disease Podcast
MPS Hunter Syndrome with Daniella Vandepeer
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For this week's episode of the podcast, we're joined by Daniella Vandepeer, who is a mother to Caleb who has a diagnosis of MPS II Hunter Syndrome.
Daniella is also currently busy furthering her career and studying nursing and midwifery. She has a wealth of experience and expertise and has also previously worked in HIV advocacy and has served as a trustee for the MPS Society.
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