The Rare Disease Podcast
Interviews with patients, clinicians, advocates, students, researchers focusing on rare disease in clinical medicine. This podcast is brought to you by Medics4RareDiseases who are asking medical professionals to #daretothinkrare in order to improve diagnosis, clinical care and research in this neglected but really important field of medicine. 350 million people in the UK live with a rare disease so while each disease is individually rare, together rare diseases are common.
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The Rare Disease Podcast
Rareminds – Let's talk about mental health with Kym Winter
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Melissa is joined by Kym Winters, the founder of charity organisation Rareminds and psychotherapist, to discuss the impact rare disease has on mental health and what support for mental health can look like for individuals, families and medics. Rareminds is a not-for-profit Community Interest Company (CIC) and the organisation has been providing online counselling, therapy and wellbeing services for rare disease charities since 2014. They do amazing work and they support professionals and patient leaders in making mental health integral to rare disease patient care.
In this episode we explore why mental health should be at the centre of patient care and how medics can open conversations on mental health, how to signpost and access further support an how medics can take care of their own mental health so that you can continue to offer great care and support in the clinic.
Find out more about Rareminds and what they do here: www.rareminds.org
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