The Rare Disease Podcast
3.5 million people in the UK live with a rare disease, so while each disease is individually rare, together rare diseases are common. Hear interviews with patients, clinicians, advocates, students and researchers focusing on rare disease in clinical medicine.
This podcast is brought to you by Medics for Rare Disease. Podcast distributors create their own transcripts and M4RD doesn’t take responsibility for them
The Rare Disease Podcast
Not your usual Dermatologist - a DM with Dr Barlow
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Lucy has a deep and meaningful with Dr Rich Barlow, Dermatology Registrar in the West Midlands and Chair of Trustees for Action for XP. Rich also lives with XP and shares his experiences living with the disease. From universal teenage angst to the incredible challenge of living everyday keeping himself shielded from any UV light. It's a good ol' heart to heart.
People who have XP (xeroderma pigmentosum) must take extreme measures to protect their skin from ultraviolet (UV) light. This includes anything that emits UV light, like the sun and some lightbulbs which can damage their skin.
Dr Rich and Lucy get into the nitty gritty of how the ubiquitous worries of life intersect with the extraordinary challenges of living with a rare condition.
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