The Rare Disease Podcast
3.5 million people in the UK live with a rare disease, so while each disease is individually rare, together rare diseases are common. Hear interviews with patients, clinicians, advocates, students and researchers focusing on rare disease in clinical medicine.
This podcast is brought to you by Medics for Rare Disease. Podcast distributors create their own transcripts and M4RD doesn’t take responsibility for them
The Rare Disease Podcast
Diamond-Blackfan Anemia with Angela Cornwall
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For this week's podcast, Melissa speaks with Angela Cornwall who is a parent carer for her daughter Natalie, who lives with a rare condition called Diamond-Blackfan Anemia. Angela has used her experiences and wealth of information to create solutions to not only help her own family, but as many people as possible.
Diamond-Blackfan Anemia is a rare condition that primarily affects the bone marrow, but people with this condition can also have other physical abnormalities affecting various parts of the body.
If you would like to find out more about Diamond-Blackfan Anemia you can find useful information here http://diamondblackfan.org.uk
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