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The Rare Disease Podcast 4 Medics
The Rare Disease Podcast 4 Medics
Facial Differences and Finding Self-Love with Jono Lancaster
For this week's guest, Lucy interviews Jono Lancaster, who is an author and public speaker who has a condition called Treacher Collins Syndrome. It is a rare congenital condition that causes facial bones to develop asymmetrically.
Having struck up a relationship with Fearne Cotton, Jono has been featured on her Happy Place podcast, which has led to the idea to publish his own book, 'Not all Heroes Wear Capes' released later this year, all about finding self-love and accepting yourself.
Through his work, Jono has been encouraging others to love themselves too by looking after their own mental health and is the co-founder of charity Love Me Love My Face, which supports those with Treacher Collins Syndrome and other craniofacial conditions.
Jono speaks to Lucy all about his experiences with Treacher Collins Syndrome and what he's learnt over the years.
If you are interested in reading Jono's book, it is available to pre-order now https://www.penguin.co.uk/authors/289864/jonathan-lancaster
The Royal Society of Medicine webinar mentioned in this podcast can be found here https://www.rsm.ac.uk/events/medicine-and-me/2022-23/mmr51/
If you or anyone you know has been effected by the topics discussed in this podcast, here are a couple of resources which may be helpful to you.
Mind Mental Health Charity https://www.mind.org.uk
Samaritans https://www.samaritans.org
Changing Faces - Providing support and promoting respect for everyone with a visible difference.
Jono can also be contacted on his instagram @jonolanc
Views, ideas and opinions expressed in this podcast are personal to the individual and Medics4RareDiseases does not accept responsibility for those expressed by guests.
M4RD receives funding from commercial companies which it works independently from. M4RD's Partners and Funders do not accept responsibility for any views expressed in this podcast.
M4RD does not endorse any companies or products that it receives sponsorship from. For more information please see the show notes and www.m4rd.org/sponsors #DareToThinkRare