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The Rare Disease Podcast 4 Medics
The Rare Disease Podcast 4 Medics
My Journey with Superficial Siderosis
For this week's episode of the podcast Lucy talks to Deborah Hatch who has Superficial Siderosis, which is a rare chronic progressive neurological dysfunction characterised by a classical triad of symptoms consisting of sensorineural hearing loss, cerebellar ataxia, and myelopathy.
She had a deformity on her spinal cord and was operated on at the age of three and is still looking for answers about her condition now.
Hear Debs' story and learn more about this very rare condition.
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