The Rare Disease Podcast 4 Medics

My Journey with Superficial Siderosis

April 11, 2023 Medics4RareDiseases Season 4 Episode 4
My Journey with Superficial Siderosis
The Rare Disease Podcast 4 Medics
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The Rare Disease Podcast 4 Medics
My Journey with Superficial Siderosis
Apr 11, 2023 Season 4 Episode 4
Medics4RareDiseases

For this week's episode of the podcast Lucy talks to Deborah Hatch who has Superficial Siderosis, which is a rare chronic progressive neurological dysfunction characterised by a classical triad of symptoms consisting of sensorineural hearing loss, cerebellar ataxia, and myelopathy.

She had a deformity on her spinal cord and was operated on at the age of three and is still looking for answers about her condition now.

Hear Debs' story and learn more about this very rare condition.

Views, ideas and opinions expressed in this podcast are personal to the individual and Medics4RareDiseases does not accept responsibility for those expressed by guests.

M4RD receives funding from commercial companies which it works independently from. M4RD's Partners and Funders do not accept responsibility for any views expressed in this podcast.

M4RD does not endorse any companies or products that it receives sponsorship from. For more information please see the show notes and www.m4rd.org/sponsors #DareToThinkRare

Show Notes

For this week's episode of the podcast Lucy talks to Deborah Hatch who has Superficial Siderosis, which is a rare chronic progressive neurological dysfunction characterised by a classical triad of symptoms consisting of sensorineural hearing loss, cerebellar ataxia, and myelopathy.

She had a deformity on her spinal cord and was operated on at the age of three and is still looking for answers about her condition now.

Hear Debs' story and learn more about this very rare condition.

Views, ideas and opinions expressed in this podcast are personal to the individual and Medics4RareDiseases does not accept responsibility for those expressed by guests.

M4RD receives funding from commercial companies which it works independently from. M4RD's Partners and Funders do not accept responsibility for any views expressed in this podcast.

M4RD does not endorse any companies or products that it receives sponsorship from. For more information please see the show notes and www.m4rd.org/sponsors #DareToThinkRare