The Rare Disease Podcast
Interviews with patients, clinicians, advocates, students, researchers focusing on rare disease in clinical medicine. This podcast is brought to you by Medics4RareDiseases who are asking medical professionals to #daretothinkrare in order to improve diagnosis, clinical care and research in this neglected but really important field of medicine. 350 million people in the UK live with a rare disease so while each disease is individually rare, together rare diseases are common.
Podcasting since 2021 • 65 episodes
The Rare Disease Podcast
Latest Episodes
Mental health and victim blaming at work
For this week's episode of the podcast, and to highlight Mental Health Awareness Day, our guest is Kym Winter, the CEO from Rareminds.Rareminds is the first specialist, non profit, rare disease co...
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Season 7
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Episode 7
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33:50
She said I had Becker Muscular Dystrophy - it was like a grenade going off
For this week’s episode of the podcast, Lucy speaks with our ambassador Dr Beth Meek and singer/songwriter David Hick who were both recently featured with M4RD in The British Medical Association’s magazine ‘The Doctor’.You can listen to ...
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Season 7
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Episode 6
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33:30
"I want the world to be kind to James" our thoughts on the new Colin Farrell interview
For this week's episode of the podcast, Lucy chats with Emma all about why Disneyland is more inclusive than society and Colin Farrell's recent interview where he talks about his son's rare condition Angelman Syndrome.Angelman Syndrome ...
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Season 7
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Episode 5
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40:28
'I am: Celine Dion' - how relatable (and unrelatable) is it?
Celine Dion was diagnosed with Stiff Person Syndrome in 2020. Lucy chats with our trustee Dan Jeffries and our amabassador Emily Livesey to discuss their thoughts on her new docufilm and discuss how relatable (and unrelatable) Celine Di...
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Season 7
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Episode 4
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41:34
Blind skiing and expressive art
For this week's episode of the podcast, Lucy speak's with Indy about skiing, art and disability. Indy is one the teachers at Stagecoach, who put on performing arts workshops for children.She lives with a condition called Oculofacialcard...
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Season 7
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Episode 3
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34:15