The Rare Disease Podcast
Interviews with patients, clinicians, advocates, students, researchers focusing on rare disease in clinical medicine. This podcast is brought to you by Medics4RareDiseases who are asking medical professionals to #daretothinkrare in order to improve diagnosis, clinical care and research in this neglected but really important field of medicine. 350 million people in the UK live with a rare disease so while each disease is individually rare, together rare diseases are common.
Podcast distributors create their own transcripts and M4RD doesn’t take responsibility for them
Podcasting since 2021 • 70 episodes
The Rare Disease Podcast
Latest Episodes
"Celine Dion spoke candidly and openly about Stiff Person Syndrome, but no-one picked up on that"
For this week's episode of the podcast, Helen our training programme manager takes over as host to speak with Mariette Kono, who is a medically retired occupational therapist who lives with Stiff Person Syndrome.Mariette talks all about...
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Season 7
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Episode 11
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31:27
What misconceptions are there about rare disease?
This week's episode of the podcast is a slightly shorter one, and this time, Lucy is the guest along with Dr Agatha, one of M4RD's ambassador's and a recent graduate from the University of Glasgow as well as being an academic foundation doctor ...
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Season 7
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Episode 10
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24:38
The shocking parallels between Flowers for Algernon and those living with rare diseases
For this week's episode of the podcast Lucy welcomes back our ambassador Daval Amratlal to review the book Flowers for Algernon by Daniel Keyes.Algernon is a laboratory mouse who has undergone surgery to increase his intelligence. The s...
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Season 7
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Episode 9
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32:09
“That's not a Black disease” - Malone Mukwende talks about stigma and exclusion
For this week's episode of the podcast, Lucy speaks with Malone Mukwende who is the founder of the platform BlackandBrownSkin. After his arrival at medical school, Malone became acutely ...
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Season 7
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Episode 8
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54:31
How guidelines have the potential to confuse people, and why!
For this week's episode of the podcast, Lucy speaks with Grace Knight, who is one of our ambassadors working as a junior doctor and is back for her second podcast with us. She got involved with M4RD when her brother was diagnosed with a rare di...
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Season 7
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Episode 7
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35:33